SDE public advisory and accountability group

This project will involve the public in the design of a ‘secure data environment’ (SDE).

NHS England has asked the north-west region to develop a SDE. The SDE will allow researchers to securely access anonymised healthcare records for research on a wide range of topics. It is essential to involve local people in development of the SDE to understand their opinions, expectations, and concerns about the use of health data for research.

People of all ages, and from all backgrounds, are welcomed and encouraged to be take part. No previous experience of research, health data or advisory groups is needed.

This programme of work is being carried out by teams from Lancashire and South Cumbria, Cheshire and Merseyside and Greater Manchester integrated care systems.